Most people don’t understand what the term ‘Previvor’ means. It is our goal to make sure that patients faced with tough decisions after genetic testing have a voice, and resources available to them.
It’s been a big week for the BRCA Community. On the heels of Myriad’s announcement to stop disputing their patents on BRCA, the White [...]
I always think of Mary-Claire King as this heroic figure who probably never struggled to become a great scientist. THIS shows the real side of [...]
Written by KJ Surkan. Professor Surkan is a trans-identified breast cancer survivor with a BRCA1 mutation and a PhD in English. Dr. Surkan is a [...]
This past weekend I spoke an amazing conference called Medicine X. My goal at this conference was to explore the intersection of the ePatient [...]
Since the posting of this new “informational” PSA from the company that formerly held a patent on BRCA1 and BRCA2, there is growing [...]
What is a BRCActivist? A term that I made up when I decided that “BRCA / Breast Cancer / OVCA Activist who blogs/advocates/tweets/fights for [...]
When googled – the phrase no data about me without me seems to have many more search results coming Europe than the US. It has a nice ring [...]