It has been quite a week in the genetic data geek-o-sphere! There are three big stories happening right now, that are really interesting and relevant to the BRCA community.
- Follow along on Twitter at #SXSH and #SXSW
- The lovely ladies of the #BCSM community will be speaking today at 3:30 CST with Xeni Jardin: http://boingboing.net/2014/03/10/breast-cancer-and-online-commu.html
- 23andMe Founder Anne Wojcicki talks about the future of preventative medicine: http://www.engadget.com/2014/03/09/future-of-preventative-medicine/
- Bill Nye talks about science and startups: http://techcrunch.com/2014/03/09/bill-nye-startups-and-science/
- Edward Snowden speaks out for the first time (and talks about data privacy): http://www.forbes.com/sites/kashmirhill/2014/03/10/edward-snowden-implores-tech-community-to-build-more-secure-products/
Let’s hope Venter figures out how to partner with patient communities and advocates and make sure he is truly getting informed consent to mine that genome data! ( : If he does this ethically, then I think he could accomplish a great deal of good.
My question is: do we really want to live longer? I have always been more interested in finding smarter ways to screen for, treat, and prevent cancer ….especially for those of us whose families get cancer younger ages.
But perhaps if we achieve the former, we also gain the latter. Thoughts?
- Myriad lost their request for an injunction against all those new genetic testing companies on Monday. Check out the article in the NYT: http://www.nytimes.com/2014/03/11/business/patentholder-on-breast-cancer-tests-denied-injunction-in-lawsuit.html?_r=1 …When are they gonna fire all those fancy lawyers and invest in a forward-thinking company strategy that treats our community as stakeholders rather than intellectual property?
- New controversial bill to kick the FDA out of digital health: http://venturebeat.com/2014/02/26/new-digital-health-bill-proposes-to-undermine-the-fda-draws-mixed-reactions/